Jackson has done great today. Last night they moved him from one room to another, because of several equipment problems. The move seemed to do the trick, because they haven’t had any problems with the monitors since they made the move.
After the surgery they continued to monitor his Hematocrit and blood gases very closely, and made some changes to supplemental blood he was getting as well as adjusting his ventilator settings. It amazes me how dialed in these clinicians are. They are so good at what they do.
The hospital provided us with a sleep room, right down the hall from Jackson’s room. I was a little surprised to find it was only a twin bed; I suppose it’s a good thing that Megan likes me.
We woke up and came to see Jackson about 7:00 AM or so, spent just a few minutes and left so the nurses could do shift change. We went back to sleep for a couple hours and got up and showered then spent a couple hours sitting with our little man. I started thinking about when I was in Boy Scouts, and we would sit up late at night staring at the campfire. We would have conversations about why it was so interesting to stare at fire, but none of us could ever come up with a reason. I have found the same is true with Jackson. I find I can just sit and stare at him for hours; but for one very good reason- he is mine. I can’t get over the fact that I have a son. Every time I think about it, I grin from ear to ear. How lucky am I that I have a little boy that is such a fighter. I know Jackson will do marvelous things in his lifetime. He has already done so much in his short three and a half days. He carries such a strong spirit with him. I am continually amazed at how much he is teaching me.
I wasn’t sure how to write about these updates so I’ll just throw them out one line at a time…
- The Dopamine drip Jackson was on (to help regulate his blood pressure) as of tonight has been turned completely off. This is a great thing, as it means his body remembers how to regulate it’s self.
- They were giving Jackson an IV form of Nitroglycerin. They were giving it to him to help keep his coronary arteries open. They have completely turned that off as well.
- The Milirnone (similar to the Dopamine) has been turned way down.
- He is still on a little bit of Calcium Chloride to help regulate some metabolic processes; so we’ll have to see about what happens with this in the next day or two.
- Jackson’s chest will likely be closed tomorrow- a great thing! I really wanted to be able to watch them close it (as they do it at the bedside) and they really didn’t want me there- I asked.
- Hopefully in 4 days or so, they will be able to extubate him; meaning pull out the tube that is breathing for him. They have his ventilator set up to allow him to breath on his own when he can. When he falls asleep or “forgets” to breath, the machine will do it for him. They are slowly weaning him off of it.
He has been super active today. We got some really cool pictures of him looking around. When we came back to see him tonight he was super tired. He didn’t really open his eyes at all. I thought it would be a good opportunity to take a few pictures. There is a small light on the camera that comes on momentarily to allow the lense to focus (it’s not the flash), when it came on he really didn’t like it. I didn’t know a kid that was only 4 days old could give a look that dirty. It was the funniest thing.
I have posted a few pictures and a video below with some captions of what has gone on yesterday and today:
|Jackson has finally started to open his eyes and look around. This was tonight about 9:30.|
|Opening his eyes!|
|Megan giving Jackson a little love before they wheeled him off to fix his perfect little broken heart.|
|He is a trooper!|