As of today, Jackson will be here in 21 days. Three weeks to the day. I can’t believe that it’s so close! Nine months is flying by. As of Friday, Megan will be staying in Utah with her friend Ashley. I will be left at home to earn money and watch the Dog. I think this is really Megan’s way of testing me to ensure that I am still of value and that I can handle life caring for another living creature in a long term setting. Here’s to hoping I pass.
I am slowly compiling a list of people who otherwise want to stay informed on our progress once the “magic” starts happening. If you would like to be informed, please leave your phone number or email address in a comment or email and I will make sure you get the updates. I am hoping to be able to give updates as often as we have news to give…. Who really knows how often that will be.
Otherwise, please keep Megan and Jackson in your prayers. The both of them will need all the help they can get. Love you guys!
Great news! At our last appointment at the OB clinic, we decided on a date. Megan will arrive at the University of Utah hospital at 8:00 PM June 20th, and they will start the labor process shortly after that. So with any luck Jackson will be born on June 21st! We are super excited.
I again apologize for being so slow to update this silly thing. I never pictured myself as a blogger. We have since been to the outpatient cardiology clinic at Primary’s several times, and had a total of two fetal echocardiograms. Fortunately everything is still looking good; or as good as a sick little baby can look. No new changes to report. Megan will stay in Utah with our good friends Ashley and Jordan Boyd starting June 1st. I’ll travel down a few times for doctors appointments and other things.
I don’t know anyone who would wish this experience on their son or daughter. It is an unfortunate thing that we have been asked to deal with. That being said, I am trying to look at the bright side of things. I have found this whole experience very educational to me. I am learning things about little hearts that I otherwise would probably never have learned. Having the job that I do, I hope that one day the knowledge I have gained throughout this whole experience will bless the lives of others; perhaps in their time of need.
One last thing… If you would like to be updated on our progress when the actual delivery starts, when the little guy gets here and the results of the surgery, please get me your cell phone number or email address or whatever. I hope to be able to send out updates as often as we get them. Jackson has a lot of people praying for him, and I would like to keep you all as updated as you would like.
Thanks, check back soon for more updates!
Sorry it has taken me so long to get around to giving some updates on Jackson. We have been to Primary Children’s Medical Center had an echocardiogram and were able to speak with several fetal cardiologists. The general consensus is that Jackson has transposition of the great arteries (TGA). It’s a relatively common condition among children with congenital heart defects, but still presents some unique challenges for everyone involved. I’ll go into some more detail on this when I get a minute.
We have a pretty solid game plan that goes something like this:
1. Megan will for sure be delivering in Salt Lake City at the University Hospital. She will likely be induced about a week or two early.
2. When the little guy finally arrives, he will be taken immediately to the Cardiac Catheterization lab, where he will undergo a procedure to keep a portion of his heart open. The procedure is called ballon atrial septostomy- for my medical friends. Long story short, they will use a ballon to “pop” a make an otherwise small hole, a little bigger- and allow for oxygenated and unoxygenated blood to mix. Jackson will also be started on a medication called Alprostadil (a trade name for synthetic prostiglandins). The medication has a wide variety of uses, but specifically for Jackson, it will help prevent closure of the ductus arteriosis- another spot in the heart were blood mixes in utero.
3. The hope is that with these two treatments, Jackson’s blood oxygen saturation will increase enough that he will be well enough to gather some strength for the big switch. He will undergo open heart surgery, going on either ECMO or complete bypass (i’m not really sure how they will do that- I’ll find out for sure). They will switch the arteries and bandage him all up. They’ll leave a couple of chest tubes, a central line and a set of pacing cables (if in the event they are needed) for a couple of days.
4. This is where it gets a little “iffy”… as the script goes, Jackson will heal up, his heart will recover in a couple of weeks and we will take him home and live happily ever after- we hope. However there are so many unknown variables when it comes to this operation and condition- coupled with the fact that in medicine this is still a relatively new procedure. They have only been doing this for about 20 years or so. That being said, there is no over 20 years old to see what to expect long term.
Overall these combined procedures have a very high success rate; that being said we are cautiously optimistic, and super super excited. I am so happy that grateful that we have the support system that we have. I’ll continue to blog more about the condition, updates, and things of that nature. Thanks everyone!
It’s a Boy! I can’t explain how excited I am to be having a little boy. I would have been happy with a little girl too- but I always thought we would have a boy first; and we are! I think we have decided on Jackson as a name. What do you think? Not that it matters really, because it’s our kid! And Steph- we stole it fair and square! haha
Megan had her first ultrasound on January 25th, and it was definitely a boy- it couldn’t have been more obvious. We had quite a circus of people in the room with us. The person doing to ultrasound, an ultrasound student and a nursing student. I was reminded that we are in Rexburg when the ultrasound tech referred to the penis as a “turtle.” I wasn’t sure what she was talking about then it clicked- we are in the Promise Land, so of course we can’t use anatomy words. Even with the silly word games they played, it was a very cool experience to be able to see Jackson for the first time.
With pleasure comes pain…
We were mid conversation with the tech about how interesting and rewarding her job must be, when she says “Sometimes we have to give bad…news….” as her voice trails off. She turned her head and looked at me and says “your child has a problem with it’s heart.” I couldn’t believe what I was hearing. It was like a cruel joke. I wasn’t sure what to say or do, so I just sat there and listened. Suddenly the universe and all it’s vastness seemed like it all came crashing down around me. The words of a wise friend came to mind… “you will never know what praying is really like until you pray for your child.” He was absolutely right.
The woman said she couldn’t be sure what it was but she thought that there was an abnormality with how the veins and arteries connect to the heart. We spoke a little more about it, and then Dr. Lovell came in and spoke some more with us about it. Neither of them were sure that it was what they thought it was, but were confident that there was something not right.
We got an appointment scheduled with a high risk OB doctor in Salt Lake City. We have been down there and had another ultrasound, with very little information. They are just not sure what is going on. The general consensus as of now is a condition called double outlet right ventricle. We are playing a game of waiting. We have scheduled another special kind of ultrasound at Primary Children’s Medical Center, also in Salt Lake City. That appointment will be in early March. The doctor’s want to wait until Jackson’s heart is a little bigger so it will be easier to get a good look at it
I am confident that things will turn out for the best. It’s funny that amidst life’s trials, spiritual things that wouldn’t normally stand out, start to become more vivid. I am eternally grateful for my Mom and Dad and Megan’s Mom and Dad, and the rest of my Family. I found out the other day that my two sisters (Steph and Alli) called every english speaking Temple and placed our names on the prayer role. There is power in heaven- and I can feel it.
I will keep you all posted. Keep little Jackson in your prayers, he will need all the help he can get.
So for anyone who is still following this blog we are great with child. Actually Megan is. I don’t know why, but it has always bothered me when people say to me “your pregnant!” I appreciate the sentiment, but let me state clearly, I am not pregnant- nor will I ever be. The laws of nature have ensured that. Tomorrow we have the first ultra sound appointment. I’ve bet the farm on it being a Boy, but something tells all the women in my family that it will be a girl. So we’ll just have to wait and see.
It has been a whirlwind of events the last year. I managed to put almost 10,000 miles on my car in a matter of days. I moved 4 times, quit a job, got a job and lost a job. I finally got my little gold patch in the mail, after almost 2 years worth of work.
All in all, I’m very content with life right now. We are knee deep in school, and I’m loving the time that I get to work and learn. I’ll post again tomorrow… probably going to eat crow and say, “it’s a girl!”
On Sunday, while driving home from Atlanta, my XM radio was tuned to Fox News. For those of you who don’t know, Sunday Fox News aired in depth coverage of the passing of the Health Reform Bill- as it is called by democrats. My mind and my heart were saddened beyond belief. There are no words that truly describe what I was and am feeling. It is beyond imagine to me how our government, the government of the United States of America, could have started down such a wrong path. Socialism will kill this country, and I fear that we have started down this path of political and social destruction. A friend of mine shared this video with me several years ago. It’s words came to my mind as I was listening to the passing of this bill. May God be with us during these uncertain times.
Whoa, it has been a long time since I even thought about blogging. There has been so much happen since the last time I updated anyone who actually reads this thing. I will give you a quick run down:
Summer/Fall 2008 – Started working for Portneuf Medical Center. I got a job as an ER Tech and loved every minute of it!
December 2008 – Met and fell in love with a wonderful woman, Megan Jarman!
January 2009 – Started the Paramedic Program at BYU-Idaho
April 2009 – Married that wonderful woman, who is now Megan Farmer.
June 2009 – Finished 40 credits worth of paramedic training and ready to enjoy the summer
September 2009 – Started the LAST semester of the Paramedic program, as well as the Critical Care internship with Air Idaho Rescue- my dream come true.
I am doing to try to make a concerted effort to update this every week or so. This coming January I will be in [insert unknown city?] for my Paramedic internship. I was told initially it would be Atlanta, but now who knows. Could be Vegas, Oklahoma, Montana or Idaho. Anyhow, the point is, I am going to try to update it daily- in an effort to keep everyone appraised of my successes and failures. I hope that there are at least a few funny stories to share. Anyhow, peace!
Well here I am on a Sunday afternoon with nothing to do. So… the blog gets updated. Well I’m very much enjoying my Job at Portneuf. It’s been the most educational 4 weeks of my life. There are always new opportunities to learn. It has somewhat motivated me to stay in the health care field. I’m still set and ready to go to school at ISU, though I am going to apply to the paramedic program at BYU-Idaho. So we’ll see what happens there. I made Sunday dinner today. Uncle Donny Burgers is what we call them. Needless to say it was a “man” dish as none of the women of our house wanted to partake. So the guys are full and the girls are still waiting for their chicken to marinade. Suckas. Church was good. I managed to stay awake the whole time, so bonus points for me 🙂 Katie comes home tomorrow. That will be good, as it has been a very long year without her immediate influence. So there you have it, my life in a paragraph, or at least how it is for now. I’m confident it will change soon, as it often does. Peace -0-
P.S. Find joy in your journey.